THE ADA KESHISHYANTS MEDICAL FUND
Born on October 31, 2019, Ada Keshishyants suffers from a life-threatening, rare genetic disease called Spinal Muscular Atrophy (SMA) Type 1. To learn more about this deadly disease, please visit here. Children with SMA die slowly, rarely reaching two years of age.
One shot of Zolgensma could have helped treat or even cure Ada, but at a cost of $2.125 million. In 2021, the funds were raised to purchase Zolgensma, but complications arose, and unfortunately, Ada was not able to receive the treatment.
All funds previously raised by SOAR for Ada will be used to establish the Ada Keshishyants Medical Fund. Managed by SOAR, the funds will be used exclusively to benefit the medical needs of disabled children housed in Armenia’s residential childcare facilities.
ADA KESHISHYANTS DAY CENTER FOR CHILDREN WITH DISABILITIES
Dedicated in the name of Ada Keshishyants, who suffers from a life-threatening, rare genetic disease called Spinal Muscular Atrophy (SMA) Type 1. To learn more about this deadly disease, please visit here. Children with SMA die slowly, rarely reaching two years of age.One shot of Zolgensma could have helped treat or even cure Ada, but at a cost of $2.125 million. In 2021, the funds were raised to purchase Zolgensma, but complications arose, and unfortunately, Ada was not able to receive the treatment.
Fund Reports
Updates from the Center
November 2023
Staff visit to the Ada Keshishyants Center
Yana Danielyan, from a displaced Artsakh Family also attends the Ada Keshishyants Center for Disabled Children. Yana has a hearing disability but had received her certification for hairdressing. SOAR supplied her with the tools she needed to work in her profession.
October 2023
Lilit Harutyunyan of the Ada Keshishyants Day Center, received art supplies!
August 2023
The Ada Keshishyants Medical Fund helped Angelina Petrosian with her next procedure, a selective percutaneous myofascial lengthening (SPML) surgical procedure which is a minimally invasive method designed to improve ambulation by lengthening contracted musculoskeletal tissues. The procedure went very well. She is feeling wonderful and even danced the day after her surgery!
Learn more about Angelina HERE
A message from her mother:
Dear Soar, Dear George, Susan, Hagop, we did our surgery, everything went well.
Angelina feels great and even dances the day after the operation.
Thank you again so much for giving my daughter a chance for a bright future❤️. Our family THANKS you from the bottom of their hearts
I will always send you Angelina’s videos and share our successes with you
With Respect, NAIRA AYVAZYAN
A visit to the Center by SOAR’s Vice Chairman, Raffi Jehanian.